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The Cambrian House Crew
The next frontier is to tap the quiet genius that exists outside organizations to attract innovations from people who are prepared to work with a company, even if they don't work for it.New York Times, Mar 2006
Cambrian House began as a crowdsourcing community using a wisdom of crowds based approach to discover new business and technology ideas. These pages are being kept online as a technology demo to showcase Chaordix™.
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The social network that can save lives. Many medical problems run in the family. Build a system that will let a person chart their family's medical history, connect with their family to discuss it, and connect with the rest of the world to find similar people and families and how they either have or are facing a medical issue. Users setup a family tree, fill in the details (what people had, what treatments they used, what prevention methods helped) and invite the rest of the family to join and participate (viral growth). Identify a user's medical problems that you may be at risk for. Then open up the discussion (in the family, or the entire community) on a particular medical problem. What's been done to successfully treat or prevent the problem. Create a folksonomy around medical problems by tagging entries on a particular issue. Bring in other information resources or help a person search for the resources in order to have the best chance at preventing or treating an issue.
Listening to my wife talk about her discussion with a friend and realizing there was some similar medical issues that were common between the families and that neither had a really good idea of the overall medical history and what they should be doing to avoid problems.
I think this is a good idea once you reach a critical mass of people that you can use to show trends. In fact, it would be amazing for researchers on the subject. However, I'm not sure how you get people to enter all this information before you can give them good feedback on the trends.
Techguy, I agree to a point, the community effectiveness would be determined by reaching a critical mass. However, beginning with a tool focused on charting a family through the generations is useful for simply documenting it and getting discussion started within the family. People can use their own sense to see the trends in the family. As the community grows, the system can start to provide more meaningful information and connections.
I can see that this would have a more immediate effect within a small group rather than the whole population. It's use by people with a specific medical condition would prove it's worth without needing to reach a critical mass.
I like the idea, but it seems to need refinement and possibly a slight adjustment in direction to capture a bigger market.
I vote +
With health regulations and HIPPA laws in the states, this could be a difficult sell. People are very concerned about their privacy especially when it concerns their health. If you can convince the general population that this is private, protected, and unassailable from legal and insurance interests it is sounds like a great tool for family awareness. I still do not see how it will make money based on the description you have so far given us.
Merman, I hear ya. The privacy issues are definitely the biggest concern. Honestly, I don't have the answer other to say that my on my current project, NetworthIQ, people are willing to bear their financial world, so maybe health isn't so far fetched. As long as you keep it anonymous enough and secure. I can see within family component, you're identified, but in the public view, you're identity should be kept closely guarded. In a crowd-sourced application though, perhaps it's not ideal to have too many hands in the data pot.
As far as money goes. You have two options basically.
1) keep it free, grow the community, sell ads (think big pharma would be interested?) and possibly premium services. Get the data to a point where it's useful to be licensed (important medical info).
2) focus on the family, create a compelling tool that you can charge for. Add features beyond the medical aspect, such as genealogy, photo sharing and more story telling like some of the other family 2.0 sites are doing (amiglia, ourstory, etc.).
sickanimations - Refinement is welcomed, there's always room for improvement. Thanks for the vote!
ctrlaltphilippe - Good point, appreciate the vote. If the community is small, but extremely focused, there's value there.
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